Month: March 2020

  • Dual Deprivation for Rare Disease

    Dual Deprivation for Rare Disease

    In cases of rare diseases, the genetic and biological mechanisms of conditions and physical ailments can be great, but this is only the tip of the iceberg. A significant number of patients with rare diseases and their caregivers face constant difficulties concerning mental health. It is indisputable that these patients require more from doctors and…

  • How can we sustain family carers’ capacity to care? What carers need and how technology can help provide it

    How can we sustain family carers’ capacity to care? What carers need and how technology can help provide it

    Family carers are often invisible to the health care system in meeting the care needs of older people. Yet, family carers – people who assist a family member or friend with challenges resulting from illness, disability or aging – provide three-quarters of the care older adults receive. Demands on family carers are increasing as populations…